Conscious Living Conscious Dying Part 3.

Jonny Kennedy- Fearless in live and fearless in death

When it was first shown, The Boy Whose Skin Fell Off captivated nearly 5 million viewers and helped to raise £500,000 for the EB charity DebRA. Channel 4 is re-screening the film and re-visiting Jonny’s family to see how they have come to terms with his death and the public’s reaction to the film.

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